About Us:
Cure Long Covid is a patient action group based in the UK.
Many of us have been fighting this disease for six years and we want a cure.
We have a simple goal:
To see Long Covid cured. Until then, for all patients to receive the best available diagnostics & treatments.
Our approach:
Empowerment. Urgency. Positivity. Hope. Rooted in Good Science.
Our Strategy:
To change the narrative so it reflects the latest research.
To let people know:
What is the disease
What effective treatments are available now
What’s needed to get a cure and improve treatments
Campaigns
1) Get Doctors the Tools They Need for Long Covid
Official guidance for doctors has not kept pace with the research into Long Covid. In the UK alone, there are 2 million affected. That’s a lot of workers, mothers, father, and children. There are treatments available now that can make a big difference. We want to make sure doctor are aware of the latest research and able to prescribe these treatments. Read more
2) Support Collaborative Long Covid Research
To improve treatments and cure Long Covid we need collaborative, well-funded research working with urgency. There are some great initiatives, such as the Long Covid Research Consortium and the ISLC-PAIS Conference, as well as the PolyBio Cobra initiative to build a Long Covid bio-bank. As patients, we want to play our part and do all we can to support the teams working towards a cure. Read more
3) Stronger Together. Awareness Campaign
There are 400 million people living with Long Covid. Together, we can help improve access to treatments, support the best research, and raise awareness. A cure for Long Covid benefits everyone. It’s up to us to share the knowledge and make change happen.